“I don’t know if I’m
looking forward to being 98.”
My 97-year-old patient
revealed this to me during our first meeting in my clinic examination room.
He had just moved to an
assisted living facility in Cleveland to be near his son and daughter-in-law, who
also sat in the room.
They were quiet as they
watched us interact.
“What do you mean?” I
asked.
He rested both forearms on
the high arms of his wheelchair, which caused his shoulders to hunch and gave
the impression that he was about to spring into action.
He spoke deliberately,
choosing his words carefully. His eyes were rheumy but sharply focused,
commanding my attention. I got the impression he was used to being in charge.
“I don’t want to end up…
you know, blotto,” he said, quickly pantomiming a person slouched to one side
of his chair, mouth open.
His son and
daughter-in-law glanced at each other and then at me as they arched their
eyebrows in surprise.
“Why do you think that
might happen?” I asked.
“Because of my medical
condition, or whatever you’re going to recommend I treat it with,” he answered,
matter-of-factly.
He had abnormal blood
counts, but no established diagnosis.
He was anemic, requiring a
blood transfusion every two months, just often enough to be a nuisance for
anybody.
His platelets were low,
but not low enough to put him at risk for bleeding or to require platelet
transfusions.
And his white blood cell
count was decreased, though again, not enough to render him prone to
infections.
I had already pulled up
his labs on the computer and had walked him through the results.
Given his age and these
laboratory values, it seemed likely that he had a condition called
myelodysplastic syndromes, a group of cancers in which the bone marrow fails to
make enough healthy blood cells.
The only way to be sure of
the diagnosis was to perform a bone marrow biopsy. For that, we would have to
stick a needle into the flat part of his pelvis, just below his spine, and
remove a sample of marrow from deep within the bone, to be analyzed by a
pathologist.
Bone marrow biopsies have
been used to evaluate diseases of the blood for over a century.
The contemporary biopsy
needle, invented by the Iranian hematologist Dr. Khosrow Jamshidi in 1973, is
almost comically long, long enough to reach the bone that is sometimes buried
deep beneath the skin. It looks like a prop for a movie mad scientist.
A few years ago, I
probably forfeited any “parent of the year” aspirations I may have had by pulling
one out at my son’s elementary school during a lesson to his classmates on how
blood was made. Not surprisingly, they recoiled at the sight of it.
Patients can have the same
reaction. An alternative to the needle is a drill that was shown in one
study to be just as effective
at obtaining bone marrow specimens.
Though some patients have
told me they feel less pain with the drill, others say it gives them even more
anxiety, telling me it evokes the sounds they normally hear emanating from the
dentist’s office.
I wondered whether I
really needed to make my patient go through this procedure just to establish
his diagnosis.
His blood counts had been
low for some time, implying a chronic condition that didn’t appear to be
worsening anytime soon.
Even if I did diagnose a
bone marrow cancer such as myelodysplastic syndromes, I wouldn’t treat it, as
the therapies I might suggest would necessitate even more frequent trips to the
doctor’s office for him and wouldn’t fix the underlying problem.
More important, he had
already told me that he didn’t want to be incapacitated by his disease, or by
its treatment. He valued his quality of life. I worried that if we went down
this path, I might make that worse.
“To really figure out
what’s going on with your blood counts, we would have to put you through a bone
marrow biopsy…” I started to say.
He waved his hand
impatiently, cutting me off.
“I don’t want it,” he
said. “I don’t want to go through it.”
I met his gaze for a few
seconds and nodded in agreement, as did his son.
“I’m O.K. not knowing if
you’re O.K. not knowing,” I told him. This time he nodded.
“See you back in a month,”
he replied, finishing the doctor visit. He had put an end to our encounter. On
his terms.
Source: NY Times
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